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  P11 - Health Services Research/Health Economics - Quality of Life (ID 123)

  • Event: WCLC 2020
  • Type: Posters
  • Track: Health Services Research/Health Economics
  • Presentations: 1
  • Moderators:
  • Coordinates: 1/28/2021, 00:00 - 00:00, ePoster Hall

  • 35117

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    P11.01 - Exploring Patient Reported Quality of Life in Lung Cancer Patients: A Qualitative Study (ID 3780)

    00:00 - 00:00  |  Presenting Author(s): Elena Jensen-Marini
    • Abstract
    • Slides

    Introduction
    

    In Australia lung cancer is the leading cause of cancer-related death, and represents a major disease burden substantially impacting on quality of life (QoL). Patient-reported outcome measures (PROMs) have been identified as effective methods of evaluating patient QoL. Existing lung cancer specific PROMs however, have uncertain utility and minimal patient involvement in their design and development. This qualitative study aimed to evaluate the patient perspective of existing PROMs and to explore their appropriateness for population-based descriptions of lung cancer-related QoL.

    Prior presentations: Australian Lung Cancer Conference 2020

    Methods
    

    A descriptive qualitative study was conducted consisting of semi-structured interviews with 14 patients recruited from the Victorian Lung Cancer Registry (VLCR) and Alfred Hospital via purposive sampling. Interviews first explored the factors most important to lung cancer patients QoL and secondly, patient’s perspectives on the appropriateness of existing PROMs. Thematic analysis was used to develop themes and content analysis was conducted to determine PROM acceptability.

    Results
    

    Five novel themes were identified by patients as having important impacts on QoL:

    1. Personal attitude towards the disease is important for coping

    2. Independence is valued

    3. Relationships with family and friends are important

    4. Relationships with treating team are meaningful

    5. Limited personal and public awareness of lung cancer

    These patient-identified impacts are poorly covered in existing lung cancer-specific PROMs. Patients welcomed and appreciated the opportunity to complete PROMs. However, they identified problems with existing PROMs relevance, tone and formatting.

    Conclusion
    

    Existing lung cancer PROMs poorly reflect the five themes identified in this study as most important to lung cancer patients QoL. This study reaffirms the need to review existing PROMs to ensure currency and construct validity. Future PROM development must engage patient generated themes and evolve to reflect the changing management and therapeutic landscape.

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