Virtual Library
Start Your Search
Jesme Fox
Author of
-
+
ES05 - Joint Session GLCC/IASLC: Hot Topics for Lung Cancer Advocates (ID 8)
- Event: WCLC 2019
- Type: Educational Session
- Track: Advocacy
- Presentations: 1
- Now Available
- Moderators:Anne-Marie Baird, Matthew Peters
- Coordinates: 9/08/2019, 10:30 - 12:00, Amsterdam (2011)
-
+
ES05.04 - Social Media and Lung Cancer - a Global Picture (Now Available) (ID 3178)
10:30 - 12:00 | Author(s): Jesme Fox
- Abstract
- Presentation
Abstract
The use of social media in lung cancer: an evaluation of global trends, themes and demographics.
Social media has transformed the health communication landscape. It is evident in the rise of social media groups that social media is an important communications and connection tool for the community impacted by lung cancer. Individuals across the cancer continuum use social media for a myriad of purposes and there are differences between user profiles. For example, physicians and academics use social media to announce new innovative treatment options, for debate, and to highlight the successes and failures of lung cancer research. The general population utilizes social media to fundraise, garner support, and share their personal experiences with cancer. Social media may now be one of the most common communications vehicles for global campaigns concerning lung cancer, impacting education, fundraising and advocacy.
In order to more optimally use social media to further objectives for patient organizations, it is integral to understand global trends in social media usage and what users are saying online. This global research project aims to answer these questions, as possessing more information on user trends will better inform those that are trying to reach and engage with these individuals.
This global research project will also provide an opportunity for lung cancer professionals and organizations to refine their social media communications strategies. The research will identify best practices for organizations in engaging their lung cancer communities, as well as content strategies to boost reach, engagement and community size.
Purpose:The objective of this research project is to evaluate the use of social media platforms, including Twitter, Facebook, and blogs, to understand howand whyindividuals are using each platform and whatis being said.
Methodology:Through the social listening tool Brandwatchthis study will analyze social media usage between November 2018 to May 2019 in eleven (11) countries: Canada, United States, United Kingdom, Russia, Brazil, China, India, Israel, Australia, South Africa and Poland. This study utilizes topic analysis to understand the qualitative themes that are currently happening in the online conversation.
These eleven (11) countries have been chosen due to high incidents of lung cancer, confidence in government data on lung cancer statistics, and frequency of social media use.
In each jurisdiction, Brandwatchmonitors the use and flux of specific key terms relating to lung cancer. In analyzing the data that Brandwatch generates, the team can effectively monitor the conversations (frequency, subject, emotion, and corresponding debate) that happen at a grassroots level.
In a parallel research method, the project will gather data from over forty (40) lung cancer organizations’ social media accounts across all major platforms including Facebook, Twitter, LinkedIn, Pinterest and YouTube. This data will be analyzed quantitatively and qualitatively to identify which social media strategies work best to engage members of the online lung cancer communities globally.
Analysis:Preliminary findings indicate that the conversations occurring on social media across jurisdictions are both profoundly different yet have underlying similarities. Data will be extracted from initial findings to target populations with campaigns on issues that matter distinctly to them. As technology continues to drive decision-makers, organizations must adapt to foster the best results. In understanding who and how to target populations, it is expected that global lung cancer campaigns—for awareness, public policy changes or research funding—will reach, and hopefully exceed, their targets.
Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
-
+
MA24 - Initiatives to Improve Health in Lung Cancer Patients (ID 354)
- Event: WCLC 2019
- Type: Mini Oral Session
- Track: Advocacy
- Presentations: 1
- Now Available
- Moderators:Merel N. Mountain, Nicoleta Mitrea
- Coordinates: 9/10/2019, 14:30 - 16:00, Melbourne (1991)
-
+
MA24.06 - Using Global Data as an Advocacy Tool – The Global Lung Cancer Coalition’s E-Atlas of Lung Cancer (Now Available) (ID 593)
14:30 - 16:00 | Author(s): Jesme Fox
- Abstract
- Presentation
Background
The Global Lung Cancer Coalition is the international voice of lung cancer patients and is committed to improving disease outcomes for all. The Coalition's work includes activities to support lung cancer advocates in campaigning for actions that will improve research, information, treatment, and care for people living with lung cancer.
Significant variations exist both between and within different countries in lung cancer incidence, mortality and survival. Advocates can use evidence of these variations to make the case for legislative, policy or regulatory change.
In 2014 the GLCC brought together multiple, comparable, statistical sources about lung cancer’s impact and outcomes in different nations in the first Global Lung Cancer E-Atlas. For the first time, national lung cancer data became easily accessible in a single place online.
In 2019, a new edition was published incorporating more recent global data, breakdowns by gender and age, and features to make it easier for advocates to use.
Method
Incidence and mortality data were drawn from GLOBOCAN 2018, which provides estimates, by age and gender, for 185 countries of the world.
Survival data were drawn from: CONCORD-2, covering 67 countries; the EUROCARE-5 study, covering 29 European countries; and the International Cancer Benchmarking Partnership (ICBP), comprising Australia, Canada, Denmark, Norway, Sweden and the United Kingdom.
The E-Atlas also details whether countries operate a cancer plan, have national cancer registries in place, or have implemented the WHO Framework Convention on Tobacco Control.
GLCC members were invited to validate their country’s data. Any more recent national data identified was included alongside the data from other sources.
Result
The Lung Cancer E-Atlas is publicly accessible on the GLCC’s website for anyone in the world to use.
Data can be compared, turned into graphs and infographics, and shared via social media. It can also be downloaded ready for use in presentations.
Clinicians have used the data in presentations to national and regional congresses. Patient advocacy groups are using it to support their engagement with national policymakers and media.
Conclusion
Feedback from GLCC members confirms that the E-Atlas continues to be an essential resource in their campaigning and advocacy. Policymakers respond positively to being able to see how their country’s national data compares to that of other countries.
The GLCC is keen to increase the profile of the E-Atlas so that any lung cancer advocate – whether a clinician, patient, carer, researcher, advocacy group or journalist – is aware of it and able to use it.
The GLCC is also keen to receive feedback on national data for inclusion or suggestions for further development.
Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
