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Sarah Elizabeth Winstone
MA24 - Initiatives to Improve Health in Lung Cancer Patients (ID 354)
- Event: WCLC 2019
- Type: Mini Oral Session
- Track: Advocacy
- Presentations: 1
- Now Available
- Moderators:Merel N. Mountain, Nicoleta Mitrea
- Coordinates: 9/10/2019, 14:30 - 16:00, Melbourne (1991)
MA24.06 - Using Global Data as an Advocacy Tool – The Global Lung Cancer Coalition’s E-Atlas of Lung Cancer (Now Available) (ID 593)
14:30 - 16:00 | Author(s): Sarah Elizabeth Winstone
The Global Lung Cancer Coalition is the international voice of lung cancer patients and is committed to improving disease outcomes for all. The Coalition's work includes activities to support lung cancer advocates in campaigning for actions that will improve research, information, treatment, and care for people living with lung cancer.
Significant variations exist both between and within different countries in lung cancer incidence, mortality and survival. Advocates can use evidence of these variations to make the case for legislative, policy or regulatory change.
In 2014 the GLCC brought together multiple, comparable, statistical sources about lung cancer’s impact and outcomes in different nations in the first Global Lung Cancer E-Atlas. For the first time, national lung cancer data became easily accessible in a single place online.
In 2019, a new edition was published incorporating more recent global data, breakdowns by gender and age, and features to make it easier for advocates to use.Method
Incidence and mortality data were drawn from GLOBOCAN 2018, which provides estimates, by age and gender, for 185 countries of the world.
Survival data were drawn from: CONCORD-2, covering 67 countries; the EUROCARE-5 study, covering 29 European countries; and the International Cancer Benchmarking Partnership (ICBP), comprising Australia, Canada, Denmark, Norway, Sweden and the United Kingdom.
The E-Atlas also details whether countries operate a cancer plan, have national cancer registries in place, or have implemented the WHO Framework Convention on Tobacco Control.
GLCC members were invited to validate their country’s data. Any more recent national data identified was included alongside the data from other sources.Result
The Lung Cancer E-Atlas is publicly accessible on the GLCC’s website for anyone in the world to use.
Data can be compared, turned into graphs and infographics, and shared via social media. It can also be downloaded ready for use in presentations.
Clinicians have used the data in presentations to national and regional congresses. Patient advocacy groups are using it to support their engagement with national policymakers and media.Conclusion
Feedback from GLCC members confirms that the E-Atlas continues to be an essential resource in their campaigning and advocacy. Policymakers respond positively to being able to see how their country’s national data compares to that of other countries.
The GLCC is keen to increase the profile of the E-Atlas so that any lung cancer advocate – whether a clinician, patient, carer, researcher, advocacy group or journalist – is aware of it and able to use it.
The GLCC is also keen to receive feedback on national data for inclusion or suggestions for further development.
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