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EP1.02 - Advocacy (ID 289)
- Event: WCLC 2019
- Type: E-Poster Viewing in the Exhibit Hall
- Track: Advocacy
- Presentations: 1
- Now Available
- Coordinates: 9/08/2019, 08:00 - 18:00, Exhibit Hall
EP1.02-01 - Prospects of Cancer Patients and Patient Association from the Viewpoint of Live Survey at Participatory Symposium (Now Available) (ID 1746)
08:00 - 18:00 | Presenting Author(s): Toshiyuki Sawa
At the Japan Cancer Patient Meeting, which is held once a year in November 2018, a live Internet survey was conducted for the symposium "Let's talk together, patient strength". Based on the results, we discussed the status ofMethod
support for cancer patients and the problems that cancer patients have. And as a patient groups, we put together requests to the government and the medical association.
We conducted an online questionnaire using the survey-monkey system immediately before the symposium, targeting participants in the cancer patient association (including online viewers). While presenting the results of the questionnaire atResult
the symposium, we exchanged opinions with the panelists and the participants,
and summarized the contents of the request.
The total number of responses was 257 people in total, including net and documents, including 85% of cancer patients and families. At the time of cancer diagnosis, 59.5% had someone to
consult, and 16.6% of those who consulted cancer survivors showed the spread of
peer support activities. On the other hand, 12..6% were not available for
consultation. The information that helped to get over the cancer was in order of website, patient's association, and medical staff. 95.1% of the participants felt that they could receive
support and livelihood from the words of the cancer experienced person. Conversely, 90% wanted to make use of their own cancer experiences. The requests for medical institutions were in the order of palliative care, collaboration with the patient association, and home care.
While the patient association activities play a role in making the most of "patient strength" through questionnaires and discussions, the place of activity, funding, and aging of the patient association officers were regarded as important issues in the future.
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