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Arantza Fernandez-Monge



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    EP1.16 - Treatment in the Real World - Support, Survivorship, Systems Research (ID 206)

    • Event: WCLC 2019
    • Type: E-Poster Viewing in the Exhibit Hall
    • Track: Treatment in the Real World - Support, Survivorship, Systems Research
    • Presentations: 1
    • Now Available
    • Moderators:
    • Coordinates: 9/08/2019, 08:00 - 18:00, Exhibit Hall
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      EP1.16-08 - Behobiamediopulmon: Putting Face and Running Shoes on Patients with Lung Cancer (Now Available) (ID 765)

      08:00 - 18:00  |  Author(s): Arantza Fernandez-Monge

      • Abstract
      • Slides

      Background

      As lung cancer is one of the most lethal in Europe, it has little presence in the media and social networks. To change this dynamic, a campaign to support lung cancer patients using the hashtag #behobiamediopulmon was planned, where the final event was the participation of patients with lung cancer in the most famous half-marathon in Spain: Behobia-San Sebastián.

      Method

      Joining forces between the Spanish Association of Lung Cancer Victims (AEACAP), the organization of the Behobia-San Sebastian and the local government of Gipuzkoa; And with the support of the main scientific societies that treat this pathology (SECT: Spanish Society of Thoracic Surgery, SEPAR: Spanish Society of Pneumology and Thoracic Surgery, SEOM: Spanish Society of Medical Oncology and SEOR: Spanish Society of Radiation Theraphy), it was decided to carry out a campaign of visibility of lung cancer patients.

      Result

      During 2018 different actions were carried out: solidary running training (300 participants), children´s race (180 children), charity market, online sale of shirts, creation of a specific song (the protagonists of the videoclip were four patients), production of a documentary-film about lung cancer (presented at a round table with the participation of the daughter of Johan Cruyff). Broadcast of the videoclip in the football matches that Real Sociedad and SD Eibar played at home until the day of the race. In the Behobia-San Sebastian, 3 patients operated on for lung cancer at Donostia Universitary Hospital runned accompanied by 300 people (among them stand out soccer players like Xabi Prieto and Xabi Alonso; musicians of La Oreja de Van Gogh, the journalist Juan-Ramon Lucas or Susila Cruyff).

      Impact achieved: 3 different national newscast spoke about #behobiamediopulmon, 10 times in regional newscast, 18 radio interviews and 14 newspaper interviews. In YouTube 800,000 reproductions of the song “Sólo si lo hacemos juntos”, 1300 reproductions of the documentary-film #datupaso, Instagram profile (@behobiamediopulmon) with 1000 followers, Prize to the charitable cause with the highest collection in the Behobia-San Sebastian 5000€, solidarity training fund 6600€.

      Conclusion

      By joining forces it is possible to perform an action that provides visibility to patients with lung cancer. Joining sport and health, we are able to create a very positive message that reaches to the newly diagnosticated patients, inspiring confidence and life expectancy. The race represents the metaphor of their situation, where patients try to reach the goal, with their ups and downs along the way, accompanied by family, friends and health personnel.

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