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OA05 - Increasing the Impact of Nursing and Allied Health Professional Interventions in Lung Cancer Care (ID 130)
- Event: WCLC 2019
- Type: Oral Session
- Track: Nursing and Allied Professionals
- Presentations: 1
- Now Available
OA05.02 - Patient Experience, Expectations and Knowledge: Lung Cancer in Australia (Now Available) (ID 2323)
15:15 - 16:45 | Presenting Author(s): Catherine Holliday
Lung cancer is the fourth most diagnosed cancer in Australia. In 2015, it was the fourth most common cause of death and the most common cause of cancer death. There were over 11,000 new cases of lung cancer in 2013, with more men (approximately 6,600) than women (approximately 4,500) diagnosed. In 2014, more than 8000 people in Australia died from lung cancer, nearly 5000 of whom were men.
Patient Experience, Expectations and Knowledge (PEEK) is a research study developed by the International Centre for Community-Driven Research (CCDR). PEEK studies conduct patient experience research using a protocol that will allow for comparisons over time (both quantitative and qualitative components). This study in NSCLC is the largest mixed methodology study in Australia in the past five years.
In this study, 80 people with NSCLC stages I to IV throughout Australia participated in a structured (qualitative) interview and an online (quantitative) questionnaire. The interview and questionnaire comprehensively covered all aspects of disease experience from symptoms, diagnosis, treatment, communication, information provision, care and support, quality of life, and future treatment and care expectations. Statistical analysis of quantitative data was conducted using R, and content analysis of qualitative data was conducted using conventional analysis to identify major themes.Result
The most common symptom experienced before diagnosis was back and/or shoulder pain (n=35, 43.75%), and the most common symptoms leading to diagnosis was breathing difficulties (n=26, 32.50%). The majority (n=58; 72.50%) of participants knew nothing or very little about lung cancer at diagnosis, and the most commonly reported theme relating to discussion about treatment was that patients were presented with only one treatment plan, with little discussion about treatment options (n=36; 45.00%). There were 76.25% (n=61) of this study population that reported receiving support primarily from family and friends. Quality of life was negatively affected in 85.00% (n=68) of the study population, the most common reason being due to the emotional and physical impact on patients and family (n=44; 55.00%). There were 51.25% (n=41) of the study population that reported relationships being strengthened, despite 75.00% (n=60) of the study population reporting feeling burdensome to their family. In relation to future needs, 53.75% (n=43) of participants called for access to treatments to be more affordable and equitable; for information to address stigma and educate the public in relation to causes of lung cancer (n=16, 20.00%); for clinicians to display more compassion/empathy (n=20, 25.00%); and for support more groups and peer support (n=17, 21.25%).Conclusion
Based on patient experience and feedback, three recommendations are made to improve patient quality of life and/or ability to manage their own health:
Public health campaigns developed to prevent lung cancer should be developed in a way that protects people currently diagnosed from the impact of negative stigma.
Information and support services, including support for carers, should be more targeted to specific disease staging and sub-types of disease.
Research funding should reflect the mortality and prevalence of lung cancer, and the number of clinical trials available should increase to aid timely decisions about new treatments.