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Maureen Rigney
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ES05 - Joint Session GLCC/IASLC: Hot Topics for Lung Cancer Advocates (ID 8)
- Event: WCLC 2019
- Type: Educational Session
- Track: Advocacy
- Presentations: 1
- Now Available
- Moderators:Anne-Marie Baird, Matthew Peters
- Coordinates: 9/08/2019, 10:30 - 12:00, Amsterdam (2011)
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ES05.03 - From Living Longer to Also Living Better; Managing Lung Cancer as a Chronic Disease - the Principle of Survivorship (Now Available) (ID 3177)
10:30 - 12:00 | Presenting Author(s): Maureen Rigney
- Abstract
- Presentation
Abstract
With exciting advances in lung cancer screening, diagnosis, and treatment, those diagnosed are living longer than ever before. Around the globe, more and more people are balancing the great hope and vast uncertainty of living with advanced lung cancer as a chronic disease.
A chronic disease is one that lasts three months or longer, doesn’t disappear, and is not preventable by vaccines nor curable by medicine. (US National Center for Health Statistics). Uncontrolled, any chronic disease can be life threatening.
The 2008 IOM report, Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs, outlined the physical, emotional, social challenges, and financial stressors that result from living with a chronic disease. Cancer as a chronic disease increases anxiety, adds fear of recurrence, causes difficulties in making life plans, affects interpersonal relationships and prompts existential questioning. People diagnosed with lung cancer may additionally experience a myriad of distinct stigma-related challenges, including guilt, shame and increased isolation.
Over ten years after the IOM report, cancer as a chronic disease remains a relatively unexamined area of study and, as Dr. Ross Camidge has said, “The rulebook hasn’t been written.” This presentation seeks to help us, the loved ones, advocates, clinicians, organizations and researchers begin to understand the unique needs of this population as we consider lung cancer as a chronic disease through:
-- The lens of the ecological concept of the ecotone
-- Recognizing the effects of months or years of continuous or intermittent treatment on the individual
-- A commonly accepted model of chronic disease management and coping
-- The lived experiences of those effected, gathered through focus groups and one-to-one conversations
Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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MA22 - Partnering with Patients to Understand Stigma, Disparities and Values Leading to Improved Lung Cancer Care (ID 154)
- Event: WCLC 2019
- Type: Mini Oral Session
- Track: Advocacy
- Presentations: 1
- Now Available
- Moderators:Diego Villalón, Christina Sit
- Coordinates: 9/09/2019, 15:45 - 17:15, Amsterdam (2011)
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MA22.11 - An Empathic Communication Skills Training Module to Reduce Lung Cancer Stigma in Patients with Lung Cancer: Pilot Results (Now Available) (ID 1725)
15:45 - 17:15 | Author(s): Maureen Rigney
- Abstract
- Presentation
Background
Most patients diagnosed with lung cancer report experiencing stigma, with 48% reporting stigma attributable to interactions with health care clinicians. Lung cancer stigma may result in multiple negative psychological outcomes such as misreporting and underreporting of symptoms and smoking behaviors and avoidance of help-seeking. One promising intervention strategy for reducing patients’ experiences of lung cancer stigma is improving empathic communication in lung cancer patient-clinician interactions. This abstract describes the conceptual model, development, and preliminary evaluation of a clinician-targeted empathic communication skills training to reduce lung patient’s experience of stigma.
Method
The goal of this new training module was to enhance responsiveness to lung cancer patients’ expression of stigma and psychological distress focusing on greater use of seven communication strategies: agenda setting, history taking, recognizing or eliciting a patient’s empathic opportunity, shared understanding of the patient’s emotion/experience, empathic responding, coping and connection to social support, and closing the conversation. Participating cancer care clinicians learned specific communication skills such as providing a rationale for tobacco use discussion, normalizing, acknowledging, preparing patients for recurring smoking questions, and encouraging expression of feelings. The 2-hour training module was delivered to thoracic oncology clinicians (physicians, advanced practice clinicians) (n=28) using a brief didactic presentation (30 min) with exemplary video demonstrations, followed by experiential role play exercises (90 min) with standardized patients.
Result
We examined preliminary efficacy of the empathic communication module by assessing participant evaluation of the training and their perceived self-efficacy before and after the training. Overall, participating clinicians reported favorable evaluations of the training, with 93% participants agreeing or strongly agreeing to all 12 training module evaluation items. Of note, perceived self-efficacy to communicate empathically with lung cancer patients increased significantly, t(27)=-4.42, p<.001 from pre- (M=3.64,SD=.68) to post-training (M=4.36,SD=.49).
Conclusion
Overall, results indicate that the new empathic communication skills training module was well received by thoracic oncology care clinicians and demonstrated significant improvements in self-efficacy from pre- to post-training. Examination of patient outcomes is needed.
Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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MA24 - Initiatives to Improve Health in Lung Cancer Patients (ID 354)
- Event: WCLC 2019
- Type: Mini Oral Session
- Track: Advocacy
- Presentations: 1
- Now Available
- Moderators:Merel N. Mountain, Nicoleta Mitrea
- Coordinates: 9/10/2019, 14:30 - 16:00, Melbourne (1991)
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MA24.06 - Using Global Data as an Advocacy Tool – The Global Lung Cancer Coalition’s E-Atlas of Lung Cancer (Now Available) (ID 593)
14:30 - 16:00 | Author(s): Maureen Rigney
- Abstract
- Presentation
Background
The Global Lung Cancer Coalition is the international voice of lung cancer patients and is committed to improving disease outcomes for all. The Coalition's work includes activities to support lung cancer advocates in campaigning for actions that will improve research, information, treatment, and care for people living with lung cancer.
Significant variations exist both between and within different countries in lung cancer incidence, mortality and survival. Advocates can use evidence of these variations to make the case for legislative, policy or regulatory change.
In 2014 the GLCC brought together multiple, comparable, statistical sources about lung cancer’s impact and outcomes in different nations in the first Global Lung Cancer E-Atlas. For the first time, national lung cancer data became easily accessible in a single place online.
In 2019, a new edition was published incorporating more recent global data, breakdowns by gender and age, and features to make it easier for advocates to use.
Method
Incidence and mortality data were drawn from GLOBOCAN 2018, which provides estimates, by age and gender, for 185 countries of the world.
Survival data were drawn from: CONCORD-2, covering 67 countries; the EUROCARE-5 study, covering 29 European countries; and the International Cancer Benchmarking Partnership (ICBP), comprising Australia, Canada, Denmark, Norway, Sweden and the United Kingdom.
The E-Atlas also details whether countries operate a cancer plan, have national cancer registries in place, or have implemented the WHO Framework Convention on Tobacco Control.
GLCC members were invited to validate their country’s data. Any more recent national data identified was included alongside the data from other sources.
Result
The Lung Cancer E-Atlas is publicly accessible on the GLCC’s website for anyone in the world to use.
Data can be compared, turned into graphs and infographics, and shared via social media. It can also be downloaded ready for use in presentations.
Clinicians have used the data in presentations to national and regional congresses. Patient advocacy groups are using it to support their engagement with national policymakers and media.
Conclusion
Feedback from GLCC members confirms that the E-Atlas continues to be an essential resource in their campaigning and advocacy. Policymakers respond positively to being able to see how their country’s national data compares to that of other countries.
The GLCC is keen to increase the profile of the E-Atlas so that any lung cancer advocate – whether a clinician, patient, carer, researcher, advocacy group or journalist – is aware of it and able to use it.
The GLCC is also keen to receive feedback on national data for inclusion or suggestions for further development.
Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
