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Laurence Bigay-Gamé



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    P3.15 - Treatment in the Real World - Support, Survivorship, Systems Research (Not CME Accredited Session) (ID 981)

    • Event: WCLC 2018
    • Type: Poster Viewing in the Exhibit Hall
    • Track:
    • Presentations: 1
    • Moderators:
    • Coordinates: 9/26/2018, 12:00 - 13:30, Exhibit Hall
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      P3.15-04 - An Interdisciplinary Educational Program Dedicated to Non-Small Cell Lung Cancer Patients to Improve their Quality of Life  (ID 12762)

      12:00 - 13:30  |  Presenting Author(s): Laurence Bigay-Gamé

      • Abstract
      • Slides

      Background

      Non-small cell lung cancer (NSCLC) guidelines require access for patients and their family to an educational program to help them managing their treatments, symptoms in order to improve their quality of life. Outpatients’ treatments are now very common, giving the patient more autonomy. However, to get the best therapeutic compliance and to improve the disease control, a patient education is necessary. This study describes an educational program and assessed its impact on patients.

      a9ded1e5ce5d75814730bb4caaf49419 Method

      ETOILE is an educational program dedicated to patients with advanced NSCLC treated by oral or intravenous treatment. First an educational diagnosis is made with the patient, then a tailored program is proposed with individual or collective educational sessions (informations about lung cancer, how to manage side effect, stress management, nutrition, smoking cessation, well-being...). An interdisciplinary team is dedicated to this program including medical doctor, coordinating nurse, psychologist, sophrologist, dietitian, social worker, tobacco specialist nurse, physiotherapist and social esthetician. A weekly meeting is organised to present every patient included in the program and to discuss the need of each patients. Assessments included skills acquisition by the patients and the program evaluation.

      4c3880bb027f159e801041b1021e88e8 Result

      In 2016, 94 patients (66% were men, median age : 59 years), entered the ETOILE educational program. Ninety-six percent of the patients were satisfied or very satisfied with the ETOILE program. They reported an improvement in their quality of life. For 81% it allowed to have a better knowledge of their illness, for 85% to know better their treatment, 76% to manage their symptoms and adapt the food, 86% to take care of them and to have better information about all helps that can be provided. For 72% of the patients, the educational program permits to manage their stress and help their relatives throughout the disease and treatment trajectory.

      8eea62084ca7e541d918e823422bd82e Conclusion

      Providing a tailored educational program is important for patients with advanced NSCLC throughout the disease trajectory even if the disease prognosis remain poor for many patients. Our experience shows that an educational program dedicated to NSCLC patients is feasible and useful.

      6f8b794f3246b0c1e1780bb4d4d5dc53

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