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Mai Nanna Schoenau
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MA17 - New Methods to Improve Lung Cancer Patients Outcomes (ID 918)
- Event: WCLC 2018
- Type: Mini Oral Abstract Session
- Track: Nursing and Allied Professionals
- Presentations: 1
- Moderators:
- Coordinates: 9/25/2018, 13:30 - 15:00, Room 205 AC
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MA17.01 - A Sense of Understanding and Belonging When Life Is at Stake – Operable Lung Cancer Patients’ Lived Experiences of Participation in Exercise (ID 13162)
13:30 - 13:35 | Author(s): Mai Nanna Schoenau
- Abstract
- Presentation
Background
Exercise has been introduced to improve physical capacity and quality of life and to reduce symptoms and side effects of treatment in surgically treated non-small cell lung cancer (NSCLC) patients. The effects of an exercise programme for this patient group has been tested in a randomized controlled trial – the PROLUCA study. The questions though, of how patients experience participation in group-based exercise studies and the impact of the shared community with fellow patients has not been previously examined. The objective was to explore lived experiences and social benefits among patients with operable NSCLC who participated in an exercise programme (the PROLUCA study) post-surgery.
a9ded1e5ce5d75814730bb4caaf49419 Method
Nineteen patients enrolled in an exercise intervention two weeks post-surgery participated in qualitative interviews at three time points. A phenomenological hermeneutical approach comprised the epistemological stance and the methodological basis was Ricoeur’s narrative philosophy. The goal of the analysis and interpretation was to provide descriptions that captured the meaning of the lived experiences of the patients.
4c3880bb027f159e801041b1021e88e8 Result
Patients included in this qualitative study had a mean age of 63 years (range 48-75), 58% were female, and 68% was retired. Eighty-four percent had performance status 0 (WHO) and almost all patients were used to some kind of physical activity. The analysis revealed social benefits of taking part in the group-based exercise intervention. The patients experienced themselves as part of a community, and the physical exercise intervention was significant in terms of the patients’ social capital. In this sense, patients gained access to resources that derived from human interaction in the exercise group, and their illness and treatment became easier to manage when shared with others in the same situation. The exercise intervention helped to create a community for patients after lung cancer surgery, and the patients experienced a feeling of belonging and equality with the other participants.
8eea62084ca7e541d918e823422bd82e Conclusion
The group based exercise intervention created opportunities for mutual understanding between patients, making illness and treatment easier to manage. The patients experienced support to gain renewed balance in life during the exercise intervention in the interaction with peers in the group. It is relevant to inform operable NSCLC patients about the potential community of understanding and belonging in group-based exercise interventions.
6f8b794f3246b0c1e1780bb4d4d5dc53Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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OA04 - Improving Access and Outcomes in Lung Cancer Management (ID 898)
- Event: WCLC 2018
- Type: Oral Abstract Session
- Track: Nursing and Allied Professionals
- Presentations: 1
- Moderators:
- Coordinates: 9/24/2018, 10:30 - 12:00, Room 201 F
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OA04.06 - Perceptions of Non-Participation in a Rehabilitation Intervention After Surgery for Non-Small Cell Lung Cancer (ID 12058)
11:25 - 11:35 | Presenting Author(s): Mai Nanna Schoenau
- Abstract
- Presentation
Background
Patients with non-small lung cancer (NSCLC) are difficult to engage in clinical trials. Few studies have examined in-depth why these patients refuse to participate. In a Danish randomized clinical trial; ’Postoperative rehabilitation in operable lung cancer patients (PROLUCA)’ only 32% of eligible participants consented to participate in the trial. The purpose of this qualitative study was therefore to explore perceptions, considerations and barriers of non-participation in PROLUCA.
a9ded1e5ce5d75814730bb4caaf49419 Method
This study was inspired by Reflective Life Research as developed by Dahlberg et al. as a descriptive and interpretive phenomenological research approach. Participants are patients who declined to participate in PROLUCA (non-participants). They were purposefully sampled and recruited from the group of patients who were found to be eligible for the exercise intervention but who declined to participate. Data were collected though telephone interviews. Openness, curiosity and sensitivity played an important role in carrying out the interviews. Analysis was performed according to Reflective Life Research.
4c3880bb027f159e801041b1021e88e8 Result
Fifteen non-participants consented to participate in qualitative interviews. Nine men and six women with a mean age of 68 years (range 48-84) were included. Mean time since surgery was 21 month (range 12-28). Five patients were working and ten were retired, eleven patients lived with a partner.
The analysis revealed three essential themes referred to the patients’ experiences of being ‘Between healthy life and good life’, ‘Under the influence of society’ and their experiences of ‘Health and rehabilitation as a personal responsibility’. Perceptions of non-participation in rehabilitation after surgery for lung cancer are moderated between freedom and necessity. Patients experience ambivalence between a wish to participate in rehabilitation and not having the energy to participate. Patients refused to participate due to daily life priorities and lack of motivation which furthermore is related to social and interpersonal relationships. The patients exercise history is also essential in declining participation. Additionally the patients are under influence of norms and health perceptions from the society.
8eea62084ca7e541d918e823422bd82e Conclusion
Patients’ perception of "the good life" was fundamental for accepting or declining participation in a rehabilitation intervention study. Consideration and barriers of non-participation was influenced by norms from the society, motivation, priorities, exercise history, social and interpersonal relations.
This study has contributed with a sensitive awareness of why patients following lung cancer surgery might refuse participating in rehabilitation. This knowledge can be taken into consideration in the planning of future clinical trials with lung cancer patients.
6f8b794f3246b0c1e1780bb4d4d5dc53Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
